tjw1’s AchillesBlog

Another opinion for CRPS anyone?

June 2, 2015

Went and saw another orthopedic doctor, Dr.Patel.  He was not my surgeon on any of my three Achilles/heel surgures, but he impressed he with how creative he was when consulted.  For example, early on in this process, he suggested the Platelet injection. He was not overly optimistic but to the point in dealing with CRPS. He does not put hardly any confidence in the stimulator and challenged me to challenge Dr. Sayed to refer me to any successfully treated patients for what I have.  So I thought I would call Sayed’s office and see if I can get that. Rather Patel wants to get another MRI to make sure we don’t have any physical issues with the tendon and also do an EMG on the nerves to see if we can pin point any nerve issues that we might be able to correct.  He likened this CRPS to a pinched nerve. So I have appointments to do that. I am trying to run both tracks now: Sayed’s stimulator and Patel’s discovery.  And, of course, keeping up the narcotics that Dr. Lee, and Dr. Morgan think I should continue. However, using the narcotics is not easy and I am afraid trying to balance that every day correctly and working at my job (programmer) will be undoable.  If I do too much pain killers, I am unfocused and foggy; if I don’t do enough, I have constant, distracting pain.  Plus I am nauseous most mornings, I feel like I have a mini hangover, and I have what can only be described as hallucinogenic dreams every night if I take the pain med.  I am taking Nucynta, by the way; 3 or 4 times a day.  It is hard.

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