Archive for May, 2009

May 04 2009

Please take 5 minutes . . .

Published by schmeck under Uncategorized

This part is not about my (or anyone else’s) achilles.  In the broader blog purpose though, it may end up being about recovery.

My family got some trying news last Monday.  We had Zander (now 5 months old) at the doctor to follow up on something, and Kate had also brought a short list of questions.  One of the questions was about some very faint brown spots, about 7 or 8, that Zander has on different parts of his body.  The Nurse Practitioner took a look at them, asking to see them all, and then she had the Pediatrician come in and do the same.  He said it’s a sign of Neurofibromatosis Type 1.  Probably like most of you, we had never heard of this.  It’s a fairly common (1 in 4,000) genetic disorder which can have a broad range of symptoms.  The spots that Kate noticed (cafe-au-lait marks) are themselves harmless, but it’s a sign that there may (or may not!) be other things to come.  We are now waiting for a referral to a specialist.

In an attempt to raise awareness (May is NF Awareness Month!), my request is to please check one of these links just to make yourself aware of this disorder and its effects.

Children’s Tumor Foundation

Neurofibromatosis

NF Canada

 

Zander in his Car

Zander in his car

 

 

 

 

My achilles update:

One more appointment with the surgeon.  He said the repair looks great, and muttered something like “I should do it like this all the time”.  Did he try something new on me?  Who knows.  He said he was surprised at where I have my ball of scar tissue - it’s at the bottom of my soleus muscle, but my rupture was closer to my heel.  Anyway, it’s been going down in size.  Still no clearance for strengthening - he’s adamant about waiting for the 3 month mark.  So I guess I keep going to physio until they tell me I’m good to go.  I go back to see the doctor at the 6 month mark.

Walking is going well.  No calf strength, obviously.  Some irritation on the incision if I walk for a while, and a little tightness, but overall pretty good.  Can’t wait for the strengthening to start at the physio.

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