Hi folks,
Glad to see you all here. I have learned so much from all of you through your various stories and experiences. I hope you continue to share your stories here. My story is perhaps a bit different from others, but I still feel a sense of connection with you all. I guess surgery can be an equalizer. Ha, Ha. My husband and I are going to watch our oldest son play tonight at a well-known coffee house. John, our son plays jazz guitar and his friend Jared plays base. They are headlining tonight as the owner heard them play several times and really liked them. My husband and I always get nervous when going to watch him play. We have this irrational fear that he will drop his guitar, for get a song or who knows what! LOL He always plays beautifully though. I will let you know how it all went. Bill, good luck with that omelet, make Julia proud. Have a good night.
Kris
Hello All, Just want you to know that Kris came through her surgery well. It took about two hours, not counting the prep and set up etc. The doctor came out to tell us exactly what he was going to do. A couple of hours later he came out and told us what he did. It all sounded good. I will leave it to Kris to tell you the particulars. She’ll be home tomorrow - may get on then if she’s not too tired. In the meanwhile, I would like to personally thank all you wonderful folks for supporting Kris the way you have been doing these recent months. It has been a big help to her morale-wise, and in giving her some sense of what to expect. So thank you. What goes around does comes around - I really believe that. I hope you all receive a great big and wonderful “comes around” for your support of Kris.
Krissy’s Dad, Ron
Hi Kris’s Dad,
You sound as if you also will be a great help to her when she comes home. Make sure she rests, but most important she must keep her mind busy!! The more she thinks about things other than her achilles the better she will be.
Make sure you get her out into the fresh (even if it is very cold) air. Helps for normal tiredness, and meeting people is important.
Hope she is OK
Annie
Hi Annie, All went well with Kris yesterday. Not sure when she’ll be home - most likely today. Probably won’t hit the blog until tomorrow - but you never know. She’s in a good bit of pain this morning. I guess seven different incisions could cause an ache or two. One under each toe to cut the tendons to ease the foot drop - and one on each side of her ankle to tend to the Achilles tendon. She did ask how often she could get pain medicine. Answer was, “every ten minutes.” She was quite shocked of course. No doubt she was still groggy when they told her she controlled the medicine with a little pump that allows her to pump some into her IV every ten minutes. She had no idea such was the case. Now that she knows, I have no doubt she is sprawled on the hospital bed under the clock with her finger poised on the button - Ron
Just got back from visiting Kris. She didn’t come home today – had some trouble trying to get the pain threshold regulated. Doctor kept her another day. Should be home tomorrow. She’s tired and still paining but wants to be home tomorrow. She’s still on some morphine, regular percocet, anti-inflamation drug, and anti-nausea pills. Will keep you posted.
Dad Ron
Aging with cerebral palsy can be a difficult experience, but it doesn’t have to be. With the right support, care, and access to resources, living with CP can be manageable and even rewarding. It’s important to stay connected to your care team, stay active, and maintain a positive attitude to ensure you have the best quality of life as you age.